Rare Cancer Guide

Not all cancers are rare strange, familiar names such as leukemia hair cells. Brain tumors, cancer of the liver and ovaries are all considered rare cancers.A cancer is considered rare if it is diagnosed in fewer than 15 people per 100,000 each year. For example, cancer of the ovary occurs in about 21,000 women each year, which means it is classified as rare.Most rare cancers in adults are grouped into a larger classification. For example, leukemia, a general classification of several rare cancers occurring in blood.The most common cancers such as lung, breast, prostate and colon cancer attract much more attention and get funding from other research that rare forms of cancer. Many rare forms of cancer can not be easily linked to environmental standards and other factors. Research on rare cancer may be able to help scientists unlock genetic codes that explain how people with cancer.

Come clinical care of patients with a rare cancer

The problem of a rare form of cancer is to find a doctor familiar with its diagnosis and treatment. Because these cancers do not occur as much as the most common cancers, most doctors have no experience in the diagnosis and treatment of these cancers.In to get the right treatment for a rare form of cancer, you may have to ask constantly by his oncologist to get answers. You may have to learn to do the research yourself and even travel to see other doctors who specialize in a field closely for cancer research. Do not be surprised if the doctor appears contradictory. Some insurance companies may even require a second opinion on the diagnosis of rare cancer.Seek a reference to a neighbor "important" treatment center for cancer, as it will increase your odds of consulting a specialist familiar with your type of cancer. Main centers of cancer treatment are generally located in major metropolitan cities.

How to find support for patients with rare cancer

Many diagnosed with a rare cancer often feel marginalized and alone, because there are so few people who share the same condition. Most cancer patients find a sort of consolation to discuss their situation with those who are in the same conditions. rare type of cancer is difficult to find others that have the same condition.In these cases, cancer patients can be found in the community through online means, such as cancer support groups and forums or blogs. rare forms of cancer may actually be easier to manage, because they can be a molecular genetic defect that is common to them. However, the difficulty is to identify these rare cancers have already correctly diagnose a rare cancer and then seek appropriate treatment. Since cancer is rare, it can be difficult to navigate these steps fairly quickly.

Consider a clinical trial

When cancers develop despite treatments such as chemotherapy, radiotherapy and surgery may be time to consider alternatives, such as clinical trials. Cancer treatment has to go through clinical trials before they are approved for use with the general population. You can choose to be a patient's clinical and pre-cancer research for a cure. To properly assess the risks! Enjoy insurance advice

Cancer patients often face few barriers to insurance. Some insurance plans require prior approval before they can pay for treatment of a rare cancer. Keep accurate records of all interactions with your insurance company. Make audio or video recordings of their conversations (ask permission first!) With insurance representatives.

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Ask someone you know who is skilled in Internet research to help you in your research studies online.

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Food, Herbs And Spices To Help Prevent Cancer

Fruits and vegetables

• Raw carrots are rich in beta carotene and substances called falcarinol and polyacetylene, which can help prevent a variety of cancers, including breast, stomach, throat, lung, prostate, bladder and intestines.

• Sweet potatoes are supposed to have a number of properties, including the fight against cancer carotenoids (beta-carotene is a form).

• Rape and leaves contain a substance called glucose molaes, which is said to attack cancer cells.

• broccoli, cauliflower, kale, cabbage and sprouts are rich in antioxidants, lutein and zeaxanthin, which are thought to be particularly affective at preventing breast cancer and prostate cancer.

• Broccoli and cabbage contain a substance called sulforaphane Phytochemical, which is a by glucoraphanin and is particularly useful in the prevention of bowel cancer.

• Kale is thought to retain indoles, which are compounds of nitrogen and is said to prevent damage in sensitive areas such as estrogen, ovaries, mutating into cancer cells.

• Beetroot is rich in antioxidants, which specifically attack the lung cancer cells.

• Tomatoes are transported in vitamin C and carotenoid called lycopene, which fights for oxygen, which is also known as "free radicals". Free radicals are often thought to activate cancer cells. Lycopene is notable for its ability to support the fight against cancer of the colon-rectum and colon and prostate cancer, breast cancer, cancer of the mouth and pancreas. canned and cooked tomatoes / puree was said to be especially concentrated in lycopene.

• Soy products like tofu are phytoestrogens and isoflavones, which by the inclusion, in reasonable amounts (no more than four or five ounces a day) are thought to block and prevent cancer cells from form and are particularly associated with reduced risk of breast cancer. Breast cancer incidence was significantly lower in Asian countries where soy products are consumed regularly. However, one must be careful, because research shows that eating too much soy can cause hormonal imbalances that can stimulate cancer cells.

• Avocados have prolific amounts of anti-oxidant called glutathione. Glutathione attacks of free radicals and stop the absorption of certain saturated fats in the intestine. Avocados are rich in beta-carotene and potassium, which is also very useful in a heartbeat.

• Citrus fruits like oranges, grapefruits, lemons and limes possess large quantities of vitamin C, folic acid and monoterpenes that can help to eliminate carcinogens from the body and is thought to suppress cancer cells.

• transportation of papayas prolific quantities of vitamin C and folic acid, which are two very effective against cancer.

• Figs contain a form of benzaldehyde, which is known for its ability to shrink tumors

• The grapes, especially red varieties, including resveratrol and ellagic acid which combine to block enzymes responsible for the growth of cancer cells. They also contain powerful antioxidants called bioflavonoids.

• Strawberries, raspberries, blackberries, blueberries and other berries red or black, consists of a wide range of antioxidants, vitamins and minerals and plant compounds believed to be very useful against many cancers.

Herbs and spices

• Romero is said to have detoxifying properties and can suppress tumor promotion. Laboratory tests have shown that it is mainly effective against breast tumors and skin.

• Turmeric belongs to the ginger family and is believed to help reduce inflammation associated with stomach, intestine and colon.

• ginger root has been used by Chinese doctors for centuries and is renowned for its healing benefits. It can be used as a spice in the tea sweet and savory herbal and dishes.

• Garlic is well known for its blood thinning and anti-bacterial properties. It can also help to eliminate oxidants that cause cancer, such as carcinogens and free radicals. Eat raw or cooked garlic is considered more effective than taking garlic supplements.

• licorice root contains a chemical called glycyrrhizin which is considered to help prevent the growth of cancer cells, although the excessive consumption of licorice can cause hypertension.

• peppers are rich in a substance called capsaicin, which is considered as a preventive against colon cancer.

Beverages

• Black, green and white teas retain antioxidants which are also known as polyphenols. These antioxidants are considered particularly defend against cancer cells and prevents them from dividing and proliferating. White and green tea is considered particularly effective against lung, colon, rectum and stomach cancer and cancer of the liver and pancreas.

• red wine also contains polyphenols and a substance called resveratrol which has been observed in grape skin. These antioxidants are known to fight free radicals. It is believed that the pinot noir grape variety contains the highest amount of resveratrol, particularly in wines where the grapes are grown colder, rainy climates, such as Chile in South America. However, alcohol consumed in large amounts, can really be a cause of cancer, so it is best not to drink more than one glass of red wine per day.
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Milestones Of Nutrition For Cancer

1. Stimulate the immune system is very powerful to see an increase in white blood cells and macrophages, which are known to attack and devour cancer cells.

2.An herbal detoxification may be useful for the removal of aluminum, other heavy metals, and many other toxins and poisons from the body.

3.Eat least 50% raw organic foods, like broccoli, Brussels sprouts, cabbage, spinach, carrots, squash, zucchini, potatoes, apples, all berries, cantaloupe, cherries, grapes, plums, Brazil nuts and legumes. All these foods are important nutrients and phytochemicals, which are important for combating and preventing cancer. Berries protect DNA from damage.

4.Eat raw garlic liberally, because it improves the immune system and is a good fighter of cancer.

5.Eat 10 raw almonds every day. Almonds contain laetrile, which has anti-cancer.

6.Green tea has cancer fighting properties of many, including a compound called EGCG, which has proven to break the blood vessels that feed cancerous tumors.

7.Eat tomatoes as possible. Tomatoes contain lycopene, a phyto-nutrients and antioxidants known to protect against cancer and fight.

8.Drink fresh "live" juices, including various combinations of the following juices, including beet, beet greens, carrots, cabbage and asparagus. They also drink grape, black cherry, and all dark-colored juices.

9.Drink only steam distilled water.

10.Get regular exercise. Exercise increases oxygen to the tissues. Cancer can not live in oxygen.

11.Yoga and deep breathing can be very useful.

12.Because possibly low-level radiation leak to avoid the microwave.

13.Avoid chemicals such as paints, cleaning products, fresh paint, pesticides and garden.

14.Remove all other known or suspected carcinogens in your life and home.

15.As far as possible avoid stress.
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More thoughts on anniversaries

Last night I went to a volunteer meeting for the local American Cancer Society Relay For Life in town. I learned a new word - voluntold. When one is a volunteer, their spouse or family member is often a voluntold. I told my husband this last night and his response was 'well at least there is a word for it'.

While at the meeting last night, one person was there and she said it was her 15th cancerversary - 15 year since she was diagnosed, 15 years of cancer free. She had a first date with a new guy and was going out to celebrate after the meeting.

I started thinking about this. Next August would be 30 years since my first diagnosis but next May is 4 years since my second. So do I have to start counting all over at 4? Or since they were two different cancers, can I say 30 and 4? This befuddles my chemo brain. I will have to think about this some more.

But I will say that if I think about how times are different there have been some significant changes. In 1981, the Internet was in its infancy (if you must know the Arpanet, the Internet's predecessor, started in the 1960's). Cancer was a killer, it was the whispered C word, it was not talked about, support groups were for little old ladies held in churches. The treatment was barbaric, chemotherapy was brutal, surgery was radical, it was terminal. Medical information was limited to textbooks to be deciphered with a dictionary at hand.

In 2007, cancer is widely discussed online, there are blogs, online communities, support groups full of young and vibrant people. Cancer is not considered terminal. It is chronic. Medical breakthroughs are happening. Treatment is evolving at the cell level. Information is everywhere.

In 2011, what will the future bring us? I don't know. I do know one thing, to celebrate 30 years of living with cancer and a significant birthday, my husband and I are going to Iceland. Why? Because its there and I haven't been there.

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healthiness and dying

I stumbled across two interesting articles this morning. First of all the CDC just released a list of the most common causes of death in the United States

15. Homicide
14. Parkinsons
13. Hypertension
12. Chronic liver disease and cirrhosis
11. Suicide
10. Septicemia (infection in the blood)
9. Kidney disease
8. Flu
7. Diabetes
6. Alzheimer's
5. Accidents - mostly motor vehicle ones
4. Lower respiratory diseases such as emphysema and asthma
3. Stroke
2. Cancer
1. Heart disease

I will say that Cancer and Heart Disease apparently account for approximately half of all deaths just between the two of them. I was surprised to see somethings on this list - suicide causes more death than murder? Blood infections/septicemia still are a leading cause of death. I would have thought that with the antibiotics available these days.

What I read from this list is that while modern medicine has made huge advances, there still is a lot of room for improvement - both on the side of medicine but also on the side of living healthy. So while medical research turns out cure after cure, us patients need to do our part to live healthier. Cirrhosis is mostly caused by alcohol abuse. Many cases of diabetes are the result of obesity. Murder is a social problem - crime control is important. Suicide - is it the result of depression mostly? More mental health professionals please! That's just a start. (I am not going to talk about cancer on this one - I think I have talked about it enough in the past and the answer is still the frustrating reply of 'they don't know'.)

I did also wonder what are the leading causes of death in other countries to compare with. I mean they tell us the US has such a high rate of diabetes and cancer and other Western diseases that are far lower in other parts of the world.

I did find this one article on who lives better as they age - Americans or British? Apparently if you live in the US you are likely to live longer but in the UK but you are less likely to have a chronic disease - so more likely to be healthier. I don't know but I think Darwin fits in here. If you make it to old age, you are likely to be healthier or something.

This too much too early but if I mull it over for a while, I might have a more profound thought. Meanwhile I will ponder causes of death and hope to avoid #2 for a long while to come.

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The riddle of the cancer relapse

Cancer relapse or the 'Cancer Sleeper Cell' are oh-so-reassuring (NOT!). I read this article and paid attention to it - through all five pages. So they are now trying to figure out if cancer has its own stem cells. But they haven't quite figured it out yet. They are trying. They have been working in this area since at least 1974 - so in 36+ years they still aren't sure.

On one level its quite interesting and almost exciting that they are looking at cancer down at the cell level to see which ones are stem cells - capable of regenerating themselves. They are this deep into cancer biology that they are looking at it cell by cell, detail by detail. They can define different kinds of cells and know which ones they should treat differently.

On the other hand, its been more than 36 years so this must be quite a conundrum if it is yet to be resolved. Why is it so complicated? I don't know. They, meaning the researchers, don't know. Yet. Even going back to the ancient Greeks, they aren't sure. Is cancer what the Greeks called 'black bile'? Or is its secret hidden in the idea of a cancer stem cell?

All of this adds up to the cancer relapse riddle. Why do some relapse or recur and others not? Did the combination of surgery, chemotherapy, radiation, and hormone therapy get rid of every cancer cell in my body? They aren't sure. Just because a tumor has disappeared visually, that we can detect, we don't know if it had stem cells that could lead to recurrence. And there is no time limit on recurrence. What if they go dormant for years and then return.

Thyroid cancer is a relatively slow growing cancer. So if there are thyroid cancer stem cells, and they grow slowly, how long will it take them to be detectable. It is my understanding that current medical technology such as a CT, MRI, ultrasound, or Xray can only detect down to approximately half a centimeter. In a pathology lab, after that something is removed from your body - whether by biopsy or surgery, they can see into the cell but they have to have found it before they can take it out.

How fast do things grow? I had a breast MRI and they indicated a 'suspicious area' that they wanted another look at in six months. At the six month mark, it was a 0.7 cm tumor (benign that time).

Well, we can't run off for tests monthly and have to assume the best - if necessary, go read Candide and learn about the 'best of all possible worlds' and get some optimism. The cancer relapse is still a riddle and we have to live with it.

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Oh, hi, I have cancer!

And then the thud as the elephant steps into the room. And the stretch of silence expands and you nervously giggle and the other person slowly backs away and looks around for someone else to talk to. Cancer is the ultimate conversation killer.

After a cancer or any other nasty diagnosis, how do you tell people you meet about your medical issues? The people who are with you on the medical roller coaster know everything. But then you meet new people, do you tell or don't you? New co-workers, new jobs, its none of their business. But new friends, new love interests, do you tell or don't you? When do you tell them? HOW do you tell them?

Depending on what kind of medical ailment you have and the maturity of the person you are talking to, you will probably hit a range of responses:

- Oh, can you excuse me a minute? I need to use the rest room/talk to someone across the room/go get a new drink. I'll be right back. (Yeah, sure, see you in the next century.)
- Oh, that's no big deal. My uncle's neighbor's hair dresser's dog walker's cousin had something like that 30 years ago and I hear they are still fine. I heard they had some kind of experimental treatment in Abu Dhabi and it cured them. (Gee thanks. I'll go get my passport to see if they can help me too.)
- Well, that's a bummer. How are you doing these days? Do you want to talk about it? (A human being! Cool.)

What if its just someone over the years who you have gotten to be good friends with. You met them after the medical disaster and they have turned into your best friend.

Or let's make it a little more complicated. You meet someone you REALLY like. You know the one you want to spend the rest of your life with and somewhere between the first date and the 'I do's' you need to figure a way to slip this little factoid in.

Since I have run into these dilemmas myself, in my experience I have learned:

- Tell them at a time when you are sitting around talking in a quiet place where you can talk. Not in a loud bar screaming over the music.

- Be open and honest and tell them why you didn't tell them before. If you were co-workers, maybe its not something you run around the office announcing. Or if its only something you tell the people that are closest to you.

- Be prepared for them to say they can't deal with it or just ignore the medical elephant in the room and ask if you are ready to order dinner. That tells you that they weren't worth the effort.

Its unfortunate that some people either just can't deal with your medical issues or prefer to ignore it and pretend it didn't happen. They aren't your friends if they can't accept you for what you are.

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Its been a year since the first Stand Up 2 Cancer

Tonight is another Stand Up 2 Cancer event. Last year there were dozens of celebrities who got up and showed their strength against cancer. The networks all showed the same show. They are doing it again tonight.

I think it is great what they are trying to do - raise funds and awareness for cancer research. But I am not sure one hour a year is the right way. American Cancer Society is around year round raising money, providing help and information and other resources to those in need. They are a 24/7 organization. Stand Up 2 Cancer is trying to help one hour a year. I would like to see them do something year round - not tv shows year round - but to develop some kind of year round presence. I haven't seen much of them during the year - just some post event PR last fall and some pre event PR in the past few weeks. I mean cancer is 24/7 and once a year isn't that much in comparison. But that is my opinion only. I won't be able to watch tonight's show but have put the DVR to use so I will watch it when I can.

I think I am finally starting to get back on the right sleep balance. Last night I had 5 hours of sleep, the night before was decent but I was falling asleep at my desk yesterday, and the night before that I was up all night long. Today I took a real nap and feel human again.

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