Rare Cancer Guide

Not all cancers are rare strange, familiar names such as leukemia hair cells. Brain tumors, cancer of the liver and ovaries are all considered rare cancers.A cancer is considered rare if it is diagnosed in fewer than 15 people per 100,000 each year. For example, cancer of the ovary occurs in about 21,000 women each year, which means it is classified as rare.Most rare cancers in adults are grouped into a larger classification. For example, leukemia, a general classification of several rare cancers occurring in blood.The most common cancers such as lung, breast, prostate and colon cancer attract much more attention and get funding from other research that rare forms of cancer. Many rare forms of cancer can not be easily linked to environmental standards and other factors. Research on rare cancer may be able to help scientists unlock genetic codes that explain how people with cancer.

Come clinical care of patients with a rare cancer

The problem of a rare form of cancer is to find a doctor familiar with its diagnosis and treatment. Because these cancers do not occur as much as the most common cancers, most doctors have no experience in the diagnosis and treatment of these cancers.In to get the right treatment for a rare form of cancer, you may have to ask constantly by his oncologist to get answers. You may have to learn to do the research yourself and even travel to see other doctors who specialize in a field closely for cancer research. Do not be surprised if the doctor appears contradictory. Some insurance companies may even require a second opinion on the diagnosis of rare cancer.Seek a reference to a neighbor "important" treatment center for cancer, as it will increase your odds of consulting a specialist familiar with your type of cancer. Main centers of cancer treatment are generally located in major metropolitan cities.

How to find support for patients with rare cancer

Many diagnosed with a rare cancer often feel marginalized and alone, because there are so few people who share the same condition. Most cancer patients find a sort of consolation to discuss their situation with those who are in the same conditions. rare type of cancer is difficult to find others that have the same condition.In these cases, cancer patients can be found in the community through online means, such as cancer support groups and forums or blogs. rare forms of cancer may actually be easier to manage, because they can be a molecular genetic defect that is common to them. However, the difficulty is to identify these rare cancers have already correctly diagnose a rare cancer and then seek appropriate treatment. Since cancer is rare, it can be difficult to navigate these steps fairly quickly.

Consider a clinical trial

When cancers develop despite treatments such as chemotherapy, radiotherapy and surgery may be time to consider alternatives, such as clinical trials. Cancer treatment has to go through clinical trials before they are approved for use with the general population. You can choose to be a patient's clinical and pre-cancer research for a cure. To properly assess the risks! Enjoy insurance advice

Cancer patients often face few barriers to insurance. Some insurance plans require prior approval before they can pay for treatment of a rare cancer. Keep accurate records of all interactions with your insurance company. Make audio or video recordings of their conversations (ask permission first!) With insurance representatives.

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